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The circumstances of living liver donation are quite different from kidney donation in that, in most cases, the potential recipient is your child.
A parent must often weigh the risk of enduring the wait for a cadaveric donation versus the personal risk of living donation. Scientific evidence showing a clear advantage to living donation with little long-term effect on the donor does not yet exist, as it does for kidney donation. Living liver donation also puts additional care-giver burdens on the family. As a consequence, some transplant centers favor cadaveric donation over living donation. You'll want to ask your transplant team about their point of view.
In the event you are considering donation—whether for a child or adult—here are some questions you'll want to answer for yourself:
You also need to be prepared for the possibility that you will not qualify as a donor, which can be emotionally taxing to a parent if the recipient is your child. Various liver transplant centers report 50%-70% of potential donors are not accepted.
The decision whether or not to donate ultimately rests with you alone. However, there are resources available to you to help you through the process. It is now becoming standard practice for a transplantation team to include a social worker or counselor. This person may interview you, asking questions, similar to those above, in an effort to assess your emotional and financial preparedness for living donation. This interview can be a time to explore your feelings with an independent third party.
You might also consider reaching out to family members, close friends, a religious or spiritual guide, or someone who has gone through this process. The LDO Message Forum is another source for support and information.
There are reasons not to donate. The financial strain my be too great. You might feel you're being pressured into it. Your own motives may be misguided. If you decide against donation, consider working with the transplant coordinator for a graceful way of backing out. There's no reason to be ashamed, especially if you've had the opportunity to educate yourself and think through the issues.
If you have problems with the transplant program, UNOS provides a patient service line (888-894-6361) "for patients to report concerns about their transplant program or their general experience with transplantation. The patient services staff can be reached by phone from 8:30am to 5:00pm Eastern, Monday through Friday. Voice mail is available outside of business hours."
© 2012 International Association of Living Organ Donors, Inc.